I have a few things to say here. May have said some of them before, but I thought I’d try to go into a bit more detail about anything like that.
Such as the numb area of my arm. Today, I can tell it goes around to my back a bit. Its borders back there tend to fluctuate, I think depending on whether or not I’m having other sensations. Like itching. Itching is fun. Neuropathic area itches, reach to scratch, realize area to scratch is actually numb to the sensation of touch, so can’t actually scratch the itch. Sometimes those itches settle in the edge of the numb area, where the one I’m trying to ignore right now is. This is a mild annoyance, and not as traumatic as the sensation of pain which sometimes crawls through the neuropathic area. Sometimes this pain comes on its own, sometimes something I do (usually moving my arm up so my hand is somewhere at head level or above) causes the pain to come. This generally strikes the back of my upper arm, is fleeting, but is shocking at times when I least expect it. Other times, it’ll come in and hover for a while.
Really, I’d rather have this than cancerous lymph nodes.
The steri-strips are still on my armpit and breast. The ones under my arm are peeling off at the ends and bunching up toward the middle, right over the wound from the surgery. I think it’s this which is causing the bruised feeling in my armpit, and the sticky areas keep catching on hair growing and pull it without warning, usually at night when I’m laying on my left side. Move right arm to more comfortable position, pull hair.
This is not to complain, exactly. It’s not that much to have to deal with. Just thinking there might be someone out there who might want to know about all the little discomforts which come with cancer treatments.
Yesterday, I received a call from Robin (a nurse, not Robyn, the Physician’s Assistant who came with my surgeon). She wanted to discuss the order Dr. Weiss, the head Oncologist, put in for something called a “porta-cath.” I think that’s what it was called. It’s something they insert under the skin of the chest for long-term chemo treatments, and she said it made sense they ordered it if I’ll be getting such treatments for a minimum of at least four months. It makes administering the chemo drugs easier and less stressful on the body—she said it can be rough on the veins if doing it through an IV. I have to go in at 7:30 in the morning on the 15th of next month for a fasting lab (whee, no eating/drinking after midnight) and report to the AMU clinic for the porta-cath to be inserted. According to Nurse Robin, they’ll sedate me for the procedure, so I’m going to take Mom with me so she can handle the cab. Also according to Nurse Robin, the sedation will wear off after a few hours and I’ll definitely feel like they’ve done something, but it shouldn’t be too painful. We’ll see about that.
If I find out they’re not doing the chemo long-term, I’m to call and tell Robin, and they’ll arrange to do something slightly different. Something about having a tube hanging out my body, and dressings which need to be changed, with a lot of care required. This enthuses me no end, I assure you, so I’m kind of hoping to do the porta-cath instead.
Robin was most displeased I recalled nothing of this being discussed during my last visit with the Oncologists. I could have heard something about it, and it may not have stuck, but she said it was up to them to make things clear, and she was upset I hadn’t received the printouts they promised. So, I’m kind of hoping my visit with them on the 7th turns out to be nothing more than me getting those printouts and hearing again what they’ll be doing, and maybe getting a firm answer on just how long and how frequently I’ll have to be in for chemo.
Today I got the letter the genetic counselor, whose name is spelled “Anne,” sent me. I’m glad she didn’t take her time about it. I have the distinct impression she got back to her office last Friday, prepared all this, and had it in the mail by the time she left the office for the day.
Some interesting facts from the letter she sent me (I haven’t read the printout from a cancer center’s website she gave me yet. Can’t bear to look at that bit yet).
-Most cases of breast cancer are sporadic (not due to inherited factors).
-Approximately 1 in 8 women will develop breast cancer in their lifetime.
-A combination of factors can contribute to development of breast cancer (including smoking, unhealthy living).
-Simply getting older can cause breast cancer—most women who develop it are over 50.
-Approximately 5-10% of breast cancer cases are thought to be caused by inherited predispositions.
-Changes in BRCA1 and BRCA2 can also lead to an increased risk of other cancers, including ovarian cancer.
-In some families, a specific genetic change can’t be identified, but many members do develop cancer (more than expected by chance). In such cases, it’s considered familial, though they can’t identify the specific cause.
Once again, she iterates I should get the genetic test because of my complete lack of knowledge of health history of my father’s side of the family and my young age (39-40) at developing it. She’s going to call me before the 7th to make sure I do want the test, then put the order in for the blood for it to be drawn at the same time I have it drawn prior to my visit to the Oncologists on that day.